Do Dementia Sufferers Have to Pay Care Home Fees?
Have You Ever Wondered Who Pays for Dementia Care?
Caring for a loved one with dementia is a journey filled with emotional and practical challenges. As the condition progresses, many families must make the difficult decision of moving their loved one into a care home. But a crucial question often arises: who pays for dementia care, and do dementia sufferers have to cover care home fees?
The answer is not always straightforward. Costs depend on personal financial circumstances, local authority funding, and potential NHS support. Understanding the financial implications can help families make informed decisions and secure the best possible care for their loved ones.
Understanding Dementia Care Homes
Dementia can cause significant cognitive and physical changes, making specialised care essential. A well-chosen care home provides round-the-clock support, a secure environment, and social interaction. There are two main types of care homes for individuals with dementia:
Residential Care Homes
- Offer personal care assistance, including help with washing, dressing, mobility, and medication.
- Provide a structured routine and a safe living space.
Nursing Homes
- Include the same personal care services but with the addition of 24/7 medical care from qualified nurses.
- Cater to individuals with more complex healthcare needs.
Some care homes offer both residential and nursing care, allowing residents to transition as their needs evolve.
Who Pays for Dementia Care in England?
Dementia care is not automatically free in England, and the responsibility for covering costs depends on an individual’s financial situation and medical needs. Here’s how funding works:
1. Local Authority Funding
If a person’s assets (including savings and property) are below £23,250, they may qualify for local council financial support. A needs assessment is conducted first, followed by a financial assessment (means test) to determine the contribution required. If the chosen care home costs more than the council’s allocated budget, families may have to pay top-up fees.
2. Self-Funding
Individuals with assets above £23,250 will be expected to cover the full cost of their care, known as self-funding. Care home fees can range from £1,000 to £3,000 per week, depending on the level of care required and location.
3. NHS Continuing Healthcare (CHC)
For those with complex medical needs, full funding may be available through NHS Continuing Healthcare (CHC). This is not means-tested and covers all care costs if the person qualifies. However, eligibility is strict and based on medical needs rather than a dementia diagnosis alone. If CHC is denied, families can appeal the decision.
4. Deferred Payment Agreements (DPA)
A Deferred Payment Agreement allows individuals to delay selling their home to pay for care. Instead, the local council covers the costs, which are repaid later from the estate.
Do You Have to Sell Your House to Pay for Dementia Care?
A common concern is whether a loved one’s home must be sold to cover care costs. The home is not counted as an asset in the financial assessment if:
- A spouse or partner continues to live there.
- A relative over 60 or a dependent child resides in the property.
- The person receives care at home rather than in a residential facility.
If none of these conditions apply and care is self-funded, the property may need to be sold unless a DPA is arranged.
Additional Financial Support for Dementia Care
Even if full funding is not available, there are additional financial support options:
- Attendance Allowance – A non-means-tested benefit for individuals over 65 who require assistance with daily activities.
- Personal Independence Payment (PIP) – For those under 65 with disabilities.
- Pension Credit – Extra financial support for low-income pensioners.
- NHS-Funded Nursing Care (FNC) – A contribution from the NHS towards nursing costs in a care home.
Housing Benefit – Support for accommodation costs for those receiving home-based care.
Steps to Choosing a Dementia Care Home
Selecting the right care home is a crucial step in ensuring quality care for a loved one. Here’s a structured approach to making an informed decision:
1. Get a Needs and Financial Assessment
Contact your local authority to arrange a care needs assessment. If the assessment determines that care home placement is necessary, a financial assessment follows to determine eligibility for funding.
2. Research Care Homes
Check the Care Quality Commission (CQC) reports for care homes in your area. These reports provide independent evaluations of care quality, staffing, and overall environment.
3. Visit Care Homes in Person
Before making a decision, visit multiple care homes and consider:
- Location – Is it convenient for family visits?
- Facilities – Are rooms private and adaptable? Are communal spaces welcoming?
- Staff Training – Are carers experienced in dementia care?
- Resident Wellbeing – Do residents appear happy and engaged?
4. Understand Legal Considerations
If the person with dementia lacks mental capacity, a designated individual with lasting power of attorney (LPA) may need to make care and financial decisions on their behalf.
Understanding Top-Up Fees and Hidden Costs
Top-Up Fees
If the local authority agrees to fund a care home placement but the family selects a more expensive option, they must cover the difference through top-up fees. These must be paid by a third party, such as a family member, rather than the individual receiving care.
Hidden Costs to Budget For
Families should also plan for:
- Specialist dementia therapies
- Additional nursing care
- Personal care items (toiletries, continence products)
- Travel expenses for family visits
What to Do If NHS Continuing Healthcare Funding Is Denied
NHS Continuing Healthcare funding can be difficult to secure, but families have the right to challenge unfair decisions. Steps include:
- Requesting a reassessment if care needs increase.
- Appealing the decision with supporting medical evidence.
- Seeking professional advice from organisations such as Compass CHC or Age UK.
Final Thoughts
Navigating dementia care costs can feel overwhelming, but understanding funding options can help families make the best choices for their loved ones. Whether accessing local authority support, applying for NHS Continuing Healthcare, or considering self-funding, it’s important to plan ahead and seek professional guidance when needed.
For expert support and compassionate home care services tailored to individuals with dementia, Home Instead Taunton & West Somerset is here to help. Get in touch today to learn how we can provide personalised care at home, ensuring comfort, dignity, and security for your loved one.
For more information and advice, contact:
- Alzheimer’s Society Dementia Connect Support Line – 0333 150 3456
- Age UK Advice Line – 0800 678 1602
- Independent Age Helpline – 0800 319 6789
- Compass CHC – 0800 008 7777
For personalised dementia home care services in Taunton & West Somerset, visit our website:Home Instead Taunton & West Somerset.
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